The first European Scleroderma Day on the 29th June 2009 was celebrated in almost all of FESCA's member countries as it was decided by the FESCA at a meeting in 2008.
Having a disease that nobody has heard of is a lonely business. When even the doctors cannot recognize it, or tell you what is going to happen, it is lonelier still. So Scleroderma Awareness Day was created to tell people, including the medical community, what it means to have this disabling disease. June 29 is a day to recognize the bravery of those who live with scleroderma, and to demand equal treatment and equal care for people with scleroderma across Europe.
History of World Scleroderma Day
In February 2010 the1ST SYSTEMIC SCLEROSIS WORLD CONGRESS was held in Florence, Italy, with participants from countries from all over the world. At the world congress it was agreed that June 29th would be celebrated all over the world. Scleroderma day grew from zero to world scleroderma day in 2 years, and is celebrated in countries in Europe, Australia, Canada, Brazil, India and many more countries.
Paul Klee (1879 – 1940)
Why June 29?
The gifted Swiss artist Paul Klee made painting his life’s work, but it was strongly influenced by his illness, systemic scleroderma, as the painting chosen for Scleroderma Day demonstrates. He died June 29, 1940.
The swiss Paul Klee Zentrum in Bern boasts the world’s most important collection of paintings, watercolours and drawings as well as archives and biographical material from all the creative periods of Paul Klee’s life which also can be visited through their website: www.zpk.org.